I recently opened my drawer, the top one. The one I don't go in very often because of the fact that it remains a reminder of the days before my daughter. In that drawer of memories, I have a bikini, a couple of cute little tank tops and some short shorts. I might be able to get one leg in one of those now. It's kind of funny to think that, my life was like that not too long ago, eight and half years to be exact.
Don't get me wrong I love my daughter with all my heart, she is my sunshine. I just miss the days when my life was mine. I miss the days that I could stay late at my boyfriends, and stay at a friends house on the weekends. I could stay up really late at night and sleep in the next morning. I could disappear for a few days and didn't have to answer to anyone, and people didn't necessarily miss me either. Nine years ago if you were to tell me that I was going to be a mother, I would have told you, that you were crazy, even sick and to stay away from me. I didn't like kids, and did not want to be a mother. I didn't think I would have a whiny kid holding onto me until my body hurt. I would be cleaning someone else's, snotty, runny nose. Cold's consistently, and late night emergency room visits.
Most days I don't go to bed on time, and there are days that I don't take a shower. My clothes aren't as nice as they used to be. I'm not a skinny size six anymore, oh my, what in the world is a size six? I don't even know. I don't wear make up anymore, unless I go out. That is not all too often. I always told myself that I would never let that happen to me, and I have.
I go to the grocery store and my daughter has awful tantrums, we can't go out to eat at a restaurant for fear that we will be thrown out, because she has decided she is going to throw an olive in the ladies hair sitting next to us. She hasn't gotten her haircut in over six months because she is scared to death if someone touches her. She has never been to the dentist because I have not found a dentist who will treat her. She must have things consistent daily. She isn't outgoing at all. She prefers to be on her own. I have to buy her new pants every few weeks because she is constantly on the floor, crawling around. She makes holes in the knees of her jeans. We go through shoes in the same manner, just being worn out from her crawling on the floor and acting like a cat. I have sat in parent teacher meetings and have cried because teachers don't understand that my daughter is different. I have been frowned and looked down upon, because people refuse to educate themselves on autism.
I am so happy to have my daughter in my life and I wouldn't change it at all, I just sometimes think back to my life before my daughter. I have decided that my life is full now. My daughter is my angel. She has allowed me to see things differently in my life. I have grown in so many ways since she has entered my life. I now realize that my life was empty back then. My daughter has taught me to listen and be patient and to slow down, to look at things through my daughter's eyes. It isn't about me anymore, and that is okay. Life is funny sometimes. It really has a way of biting you in the ass to wake you up. I am a different person now, I believe in myself. I care about others, and different causes that affect me in ways that I cannot explain. I am committed to help raise Autism Awareness and educating others. I also write; something I never thought I could do. My daughter's disorder has changed more in my life than I realize. I thought it was a curse at first, but it has been a blessing. I am fortunate, that God thought I was strong enough to put her in my life.
Published by Dacia J.Medina
I live in California born and raised. I am a freelance writer in my free time and a single mother of a beautiful daughter who has Asperger's.I also volunteer as an advocate for Autism Awareness. I try to li... View profile
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11 Comments
Post a CommentI can definitely understand what you go through daily. I have a four-year-old son with PDD-NOS. He is in a special needs classroom with a teacher that does not understand a thing about autism, including the need for a strict schedule or the need to explain changes in it to him. I also have a son that appears to have a sensory processing problem with no definite diagnosis yet. Our home is based on such a strict schedule that I have began to feel like a huge time clock daily. I congratulate you on bringing your life to light and hope that maybe someone will learn something new.
I have recently had my son ask me for a birthday party, only to have to explain to him that other little boys and girls mommies and daddies won't let them play with him because they don't know him yet. He knows that talking to strange adults is bad, and cannot understand why they think he would be like a bad adult. I haven't been able to find a way to explain that one yet. One day, I hope he will have friends
Touching and so honest.....you write beautifully.
Fantastic article. Very touching and wonderfully written. My very best to you and your daughter.
I think most mothers can relate to these feelings, but it is extra hard when one has a special needs child. I think it was Jamie (K. Wilson) that recently published an article with tips for dealing with the austic child.
Such a great article! Best of luck and blessings to you and your daughter.
Wow os so familiar!! My son was also diagnosed with Aspergers he is now 12 he still has some fits at times and is very emotional. Depakote ER and Risperdal has been our huge helper I hate that I have to medicate though but with out it he is a huge mess. Best of luck with your daughter.
thanks so much for the wonderful compliments...
Really quite a lovely article to read. Congratulations on making the best of it all. I have a disabled brother myself who is older than me. I work with Special Needs children every day. They are so precious. I put my life into this career of looking after them. I am happy to see you turn this into a great situation. All to often I see parents struggling to deal with situations. Their child waking up at 3am and not going back to sleep, leaving them all night to stay up and care. So to you I say well done. Thanks for the great article.
This article has a great lesson for people reading it. You took a devastating situation and made the best of it. Your strength and courage shine through like an early morning sun breaking up the fog. It's a wonderful model for parents in the same boat as you.
All so familiar, even the cat thing! It does get better as she learns the rules. I wish I lived near you; I bet your daughter and my son would hit it off beautifully.