The scream in your soul often betrays the smile on your face, and from time to time your hands shake, and you feel like crying. That is... you would cry...if you had the energy.
You are isolated, sadly realizing that every friend you ever had is gone. They are casualties of this war. You can't remember what it is to have a life, or to laugh from deep inside your belly, because nothing is that funny anymore.
Your days are filled with endless doctor appointments, pharmacy runs, urgent errands, and never-ending emergencies. Throw in the humiliation of bodily fluids making constant public appearances, and you swear under your breath that you'll never leave the house again without sunglasses. No one must ever see the pain that lies behind your eyes.
You know every crevice in the ER wall by heart, and you've counted all the ceiling and floor tiles. Your brain is full of vital information that every nurse needs to know, in order to fill out forms that are never glanced at by anyone.
Staying up all night is the only way to have any time to yourself, and the silence in those early morning hours is far more than golden. It keeps you breathing.
You stumble through the daylight hours, wearing a garment of fatigue and exhaustion, feeling like you never do anything quite right, though you try with all that is within, to win the approval of the one person that you can never please.
Others go about their lives, and then make not so subtle remarks about how they would do it different...and better. (And oh how you'd love to let them.) But they don't hang around long enough to ever lend a hand.
You wonder what life will be like when this is over, but then you feel so guilty for the thought, that you
are sure you've committed the unpardonable sin.
The bond that you have with your loved one is a two-edged sword. You do not know where they end, and you begin. You have been assimilated into their very body and soul. When they die, you are sure it will be because of something you did (or didn't) do.
Hours melt into days--days into weeks--weeks into months--and months into years. You are nobody's hero--just a prisoner of war.
But you are forever changed, and you cannot go back to the innocence that you once knew. The terror of aging is never far from your thoughts. You have seen the decline of the body, the loss of the mind, and the destruction of the spirit. And you, too, feel old and weary.
You know beyond any doubt that you will never do this to your children, and you pray that the myth of eternal youth will live long in their hearts. For you have been forever robbed of those beautiful fantasies.
It's not death that you fear; it's living. Living too long in a body that has betrayed you, seems far worse than leaving this earth behind.
Published by Lonnette Harrell
I have been interested in writing from an early age. I wrote, produced, and recorded my own radio program, "Love Notes" for 9 years. It was a combination of motivational/inspirational teaching and music. My... View profile
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9 Comments
Post a CommentAn excellent piece. Thank you for sharing. Hugs
Tough but admirable, well written
Having been caregiver to both parents--with different but just as harrowing ailments each--I identify with your thoughts and feelings completely. This is a marvelous piece, however painful. There is so much wisdom in it... Your opening sentence sums it all up in a poignant way. ((hugs))
Nice job! Hugz CJ
A wonderful piece Lonnette. An honest appraisal of aging and the specter of death that comes with it. I hope writing about it and other things helps ease the personal pain of watching your Mom go through this.
(Ran Out Of Room) I just could not continue, as I was very physically ill myself, and on the needle for diabetes, and a total of 9 medications. So it has been very devastating and painful for everyone, and now they think she may have ALZ. Please pray that our family will be healed, and that my mom will receive the good care that she desperately needs.
Hi Ladies! Thanks for the sweet comments. I will be seeing my mom today, for the first time in a little over a year. Due to huge family disagreements we were estranged during that time. I was her primary caregiver for 3 1/2 years. I finally had to place her in an Assisted Living, but almost immediately my brother took her out. He and my niece attempted to care for her at home last year, but her heath declined even more, and now she has moderate (or at times severe) dementia. They were not able to cope anymore either. She is now in a nursing home for rehab, but my brother and I have reconciled, and have agreed that now she must be placed as a full-time residence in a NH, because neither one of us can go any further with the one-on-one care.
I never stopped loving my mom. I have grieved this past year, as though she had died. I have never in my life been separated from her for any long amount of time, but just before our estrangement, she was very emotionally abusive to me, and I jus
Welcome back. I did not write anything in 2009 either but have checked your page and your blog often to see if you were alright. As you may remember, I have been caretaker for my Mom for the last 7 years and I can identify with much in this article. I am grateful that my Mom and I do have a good relationship, tho and I think of you and pray for you often.
Wow. This is a fantastic piece Lonnette. Thank you for sharing it.