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Gastroschisis: Babies Born with Organs Outside the Body

Doreen Bradley Satter, RN
Gastroschisis refers to babies born with organs outside the body. Gastroschisis is one of the most frequently encountered congenital anomalies in pediatric surgery. This condition happens about 1 in every 2,000 births. Gastroschsis is a defect or hole in the abdominal wall that lets the abdominal contents protrude outside the body. There is no peritoneal covering over the intestines and other organs. The hole is usually very small, but the exposed contents can range from the stomach to the rectum (almost all of the large and small intestine and stomach can be involved).

The abnormality can be seen by ultra sound as early as 14 weeks of pregnancy. Most often (75% of the time) it occurs with the first born baby. The malformation is always obvious at birth. It is a very frightening experience for new parents, but, in most cases, the defect can be totally repaired and the baby will completely recover.

Since the bowel is not contained inside the body, before birth, it floats freely in the amniotic fluid. Contact with the amniotic fluid can cause severe damage. The bowel can fail to grow, become thickened, matted, or shortened with poor mucosal function. The damage becomes more severe with prolonged exposure to the amniotic fluid, especially after thirty-five weeks gestation, so some physicians suggest early Cesarean delivery to limit bowel damage. Sometimes the physician performs weekly ultrasounds from thirty weeks on to watch for bowel wall thickening and when thickening is observed he delivers the baby by Cesarean delivery to limit bowel damage. There are many studies that claim there are no significant benefits of early Cesarean delivery over vaginal delivery at term.

Immediately after birth, any organs outside the baby's body are covered with warm, moist sterile bandages and then placed inside a special plastic pouch. A nasogastric (NG) tube is placed in the baby's nose or mouth to keep the stomach empty and to prevent chocking on or breathing in any stomach contents.

As soon as the infant is stable, surgery is done to put the intestines and organs back into the body. The surgeon examines the intestines to make sure there is no damage and that the edges of the intestines are sealed. The organs are placed back into the abdomen through the defective opening and the opening is repaired. Sometimes all the contents cannot fit back into the abdomen with the first surgery. The remaining intestines are put in the plastic pouch and are slowly pushed back into the abdomen over a period of time. Additional surgeries may be needed to repair the abdominal muscles at a later time.

Because the baby's abdomen may be smaller than normal, placing the intestine in the abdomen increases the pressure within the area and may cause breathing difficulties. The baby may need to be placed on a ventilator to breathe for him for a few days or weeks. The baby will be given IV fluids, antibiotics, pain medication and oxygen. An NG tube will be used to keep the stomach empty until the intestines start to work normally and then normal feeding are very slowly started.

In most instances gastroschisis can be totally corrected with surgery.

Published by Doreen Bradley Satter, RN

DOREEN BRADLEY SATTER, RN is a mostly-retired Registered Nurse, Artist, Published Author and Freelance Writer and has been writing for the Yahoo! Contributor Network for several years. She has one published...  View profile

  • Gastroschisis happens about 1 in 2,000 births.
  • On ultrasound the defect can be seen as early as 14 weeks gestation.
  • The condition is almost always totally corrected with surgery.
Gastroschisis happens most often in the first born child.

77 Comments

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  • melinda1/4/2011

    Hi, my daughter is 24 yrs old and was born with this also. she is now going to have her on baby this august30.she done geat when she was a baby. they done a great job puting her insides back in.she stayed in the hospital for about 1 month...hope this helps u and good luck..

  • Jamie11/9/2010

    Hello to all here! I was wondering how many here drink Mountain Dew? Mountain Dew ( along with many other soft drinks ) contains a chemical called Bromentaed Vegetable Oil ( http://fooddemocracy.wordpress.com/2009/07/29/bvo-brominated-vegetable-oil-toxic-additive-in-many-sports-drinks-and-sodas/ ).
    This chemical is linked to birth defects and after reading that BVO is corrosive I can understand it's link to this condition.

    If anyone on this board is using prodcuts with BVO I would stop using immediately!

  • maria10/28/2010

    to everyone going through these i want to say. i understand its hard seeing your baby like that but if you pray for god help and have faith. my daughter was born like that and she recovered but mybe later on she will need surgery.its been two years alredy and hope that she keeps doing well

  • diana10/25/2010

    i just found out that my grandson will be born with his intestine on the outside of his body, im very worried and concern i never heard of anyone with this condition before im just doing reserch now, i hear that its reversable and there should be no complication...can someone e-mail...i would like to know about the surgeries and will he loose his belly botton? e-mail me at classicchic123@yahoo.com

  • A. Rog10/22/2010

    I had a baby born with this in July and she's doing really well. Email me at arog421@gmail.com and I'll share my story with you

  • Jane10/4/2010

    Exompholis. (born with bowels on the outside), My sister was born with this and is now 27 years of age and desperatly wants a baby. Has anyone with this condition given birth.You can email me at j.dakin02@ntlworld.com thank you

  • sophie9/22/2010

    hi i found out at 20 weeks my baby has the same condition and im not 24 weeks, i am really really scared and prayin g that eveeything is gonna be ok, i was just wondering how long the baby usually has to stay in hospital? and how early people usually go into labour? please can sum1 email me s.morgz-ox@hotmail.co.uk

  • Kayah's Mommy9/17/2010

    iJust recently founjd out that MyBaby is qonna be aGastro bby.. iAm almost 8mnths into MyPreqnancy && iAm SuperScared && Nervous.. MyFiancee says that it will BeFine && so does EveryOne else.. The doctor's really scared me with ThisNews.. iFelt liuke MyFiancee && I did SomeThinq wronq because iNever really heard of gastro b4. But on TheOtherHand TheUltraSound showed NoSiqns of any serious defects.. HealthyNormalHeartRate,, NormalBrain && PerfectBodyStructure && FacialFeatures. MyBabyGirl is just qonna have that OneProblem && she is qonna be kinda tiny.. So all iDo && can do is Pray && put it in God'sHands:)

  • crystal henry nc9/5/2010

    MY NEICE WAS BORN WITH THIS YESTERDAY AND THEY KEAP TELLING MY SISTER THAT EVERYTHING LOOKED GOOD AND WE KNEW OF THIS THE WHOLE TIME WHEN SHE CAME OUT SHE LOOKED GREAT IT WAS A VERY SMALL AMOUNT THAT WAS ON THE OUTSIDE AND SHE WAS 7 WEEKS EARLY SHE IS BREATHING ON HER ON BUT THE THEY COULDNT SAVE ENOUGH TO BE ABLE TO FEED HER AND THE DOCTORS SAYS 3-5 DAYS BECAUSE THE INTESTINS DIED AND SHE WONT BE ABLE TO EAT BECAUSE THERES NOT ENOUGH IM TRYING TO KEEP HOPE ALIVE BUT RIGHT NOW THE ONLY THING HOLDING HER IS THE IV PLEASE PRAY FOR MY NEICE

  • Fieona Bernard7/12/2010

    i have a niece she was born with this condition in Jamaica i am getting very worried now, they did the surgery there everything was ok until all of a sudden her blood count is getting very low because of infection! so we are trying to find doctors in the Miami area to bring her to the state for better treatment so if some one knows of a good doctor or hospital can please contact me at mh2ch@yahoo.com

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