On Tuesday, March 8th, 2011 I was informed that my Mother has inoperable breast cancer. An Eastern European nurse let it slip out in my Mother's nursing home. Not great for her either, as she presumed I knew...
This had been known for months, but nobody had bothered to explain things to me. What I presumed was just an infection was, in fact, cancer. Some infection.
A Raft of Incompetence
All these months, after my Mum's stroke, I've been relieved because "at least she hasn't got cancer." I don't know how long my Mother has got left on this Earth, but the British State have made things more difficult for both of us.
Since my Mother's stroke, my lifelong loathing of the 'system' has soared into the stratosphere. I know Americans often view the British as cold. But it's not the people, it's the State itself. Oh, and those public school guys in bowler hats...
When my Mother was discharged from the hospital, I was told on the day of her departure that she was moving into a nursing home. I didn't know that she was terminally ill at this time. How ill do you actually have to be to stay in a British hospital? I wasn't consulted either as to what nursing home my Mother was being sent to. I remember my maternal Grandmother and my Father being damaged by being given the wrong medication, so I've never felt confident about letting the State look after a loved one. The home itself has turned out to be okay, apart from a soft toy I bought Mum at Christmas going missing... But my Mum wants to come home.
I wanted my Mum to stay at home, too, and I was considering becoming a full-time carer to look after her. The social worker had different ideas. I once visited my Mum in her nursing home and she was sobbing uncontrollably. I had never seen her in such an emotional state, and my Mother is an emotional woman. She said, when I visited her recently: "I wish I'd die I'm so miserable." As my friend Orchiolum/Larry said to me, maybe guys like Jimi Hendrix and Kurt Cobain were the lucky ones, dying at full power aged 27.
The breathtaking incompetence of the powers that be in sorting out my Mum's financial affairs has also caused me more stress. Meanwhile, the nursing home adds the interest on the arrears...
Taking on the State
As an only child, single guy with relatives and friends far away, it's been a case of me against the British State. But I can be difficult, as I like those odds. My rebellious teenage punk years have been vindicated by how insufferable and unfeeling the State is. That's true of most 'civilized' countries, I feel. If you let it, the State will steamroller you.
I've no idea how things are going to pan out, as I could either implode or explode. As I told a nurse in a controlled rant at my Mum's nursing home, after hearing that my Mum was dying: "The brown stuff is going to hit the fan."
My Mother wouldn't hurt a fly, and I mean that literally. Any chances of my being convinced by anyone that there is a loving God have evaporated. I respect people's right to believe what they want to believe, but my parents and I always tried to live a life based on expecting no carrot of Heaven at the end of it. I don't believe that any great, benevolent being would inflict the suffering my Mother is going through. The nightmare in Japan is another case in point.
I end this article with slightly better news, as my Mum may be having radiology treatment. But the question needs to be asked: "Why not earlier?" I wake up every morning feeling sick with worry, but, unluckily for the State, people like me are fighting back. Push people too far and there will always be consequences.
Thanks to everyone who has voiced their concern about my Mum's plight.
Published by Paul Rance
Paul Rance is the co-founder, with Andrew Bruce, of small UK publishing company, Peace & Freedom Press, which began publishing in 1985. Paul founded the booksmusicfilmstv.com website in 2005. View profile
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21 Comments
Post a CommentPaul, this is heartbreaking. Sending my best to you and your mom.
My heart goes out to you and I can feel your pain. If at all possible I would take her home with you. A nursing home will kill her faster than her illness. It is no place to be and I hope that I never live long enough to see the inside of a nursing home unless I can walk out and still wear shoes.
Would love to know if the Cancer Treatment Centers of America came up with the same prognosis. As you know, I have breast cancer too. Had I not discovered the tumor when I did, mine too might have been inoperable. Why don't you call them? Maybe they'll offer help. Here is the number in America 800-487-3526
May you and your mum find peace and comfort.
Paul, I am sorry to hear about your Mum and about how you learned of her news. Keep up the fight. If you need a hand let me know.
I am sorry to hear about you and your mother's latest struggle. I also send her a belated birthday wish. Watching my mother's condition degrade, from hospital to nursing home, was the most difficult situation I've experienced. After her passing, I wandered through guilt, relief, depression, and yearning for several years. I came away with several realizations; as cliched as it may be, if you love someone, tell them now; live in the moment; our own lives, and the lives of everyone we know, will eventually come to an end. That last one seems obvious, but it becomes much more believable as we age lose those we love who have been a part of our lives for as long as we can remember. Sobering, but not hopeless. Take good care Paul...I'm thinking of you.
I am so so sorry to hear this, I had a similar thing happen with my mom at the end of her life and I won't lie to you, it took me many years to get past the pain of it. I will say as time goes by it gets better. My mom had exhausted her insurance and the hospital was seeming pushing her going. She had had a stroke and wasnt in my opinion able to make the right decision, my step dad pushed her to go on and with the hospital pushing, and him, they talked her into it. against my protests and getting it overturned a few times, so I know how you feel about fighting for her. I called in the ethics committee, still my step dad got it changed, anyway I will spare you the details at the end, the only consolence that you can hold to is that you are doing the right and caring thing, again, I feel so much compassion for your situation, As other said above fighting for her wishes is the best thing you can do.. I am so sorry, Much strength to you and also, Hugs to you my friend
I certainly sympathize with your sadness and frustration.
The best to both.
I'm very sorry, Paul!! You have many people here who care about you and your mother!! Thank you for sharing about this...:)