Every year there are eighty thousand new cases of the language disorder, aphasia, and I get a singer. Headline: Giddy Little Husband Tools Around In His Wheelchair Greeting His Day Like He's Been Over-Dosing On His Celexia Again.
"Happy birthday to you, happy birthday to you," my husband, Don, belted out like he was determined to be heard on the moon.
The problem is no one was having a birthday. The song is one of two that Don's aphasic brain can sing using actual lyrics. Well, sort of---the words often come out like they went through a blender first.
I should be happy for lyrics. Any lyrics. After all, Don has so few words in his vocabulary since his stroke. But these two songs are different. They're ones my husband learned when he was still using a highchair and they're stored in a relatively undamaged part of his brain. Even so, hearing "happy birthday" was a pleasure this morning---for the first hour. In the second hour, sweet little wifey poo that I am, I politely requested that he switch to his other song.
"Jesus likes me. Yo, you know," he complied. Okay, so he's got work to do on that childhood favorite before he's ready for American Idol.
"Yo," I interrupted Don, "Jesus likes me? I think he loved you when you were a kid."
This afternoon we were coming back from running errands and no one had yet found the switch on the back of Don's head to turn him off and he was getting annoying. Back up here---I'll admit that I was more than annoyed. I'd reached my quota of being a Nice Nancy about the never ending, loop of songs.
I pulled over to the side of the road and told him to get out if he couldn't behave himself. Hey, it worked on my brother and me when we were kids so I figured why not give it a try. And for a split second I thought that I really could do that, shove Don and his songs out the door and drive off. How much trouble could a person get into for leaving a wheelchair bound guy sitting at the side of a country road, singing "Yo, Jesus?"
When I shifted the car into park, Don looked at me as if---well, as if I'd warped my waffles for good this time, permanently indenting brain matter that isn't suppose to be marked with such a precise pattern of man-made deformities.
"I mean it," I practically shouted, trying to sound mean and bitchy. "Get out or get quiet!" If I were inclined to be honest here I'd admit that it wasn't much of a stretch for me to be the perfect bitch. Four hours of "Jesus has a birthday" or whatever it was that Don was singing at the top of his happy little lungs was doing a number on my head.
My husband took in my angry words and gave me an angelic smile, his blue eyes smoldering with mischievousness and after a very---and I do mean very---pregnant, aphasia driven pause he said, "Change lanes."
I stared at Don for a full minute. I couldn't have been more astonished if he'd just used ruby red fingernail polish for eye liner and I wanted to bang my head on the steering wheel. (Now you know how waffles get warped in Caregiverville.) It's been five years, ten months and seven days that I've been trying to teach Don to say "change lanes" and "turn here" when we're in the car and he's frantically trying to get me to do one or the other. And the gods of Aphasia, bless their wicked asses, picked that time to let the words come down the pike and out his mouth.
"Okay, buddy-boy," I said with recessing gruffness as my bitch persona made her exit and I shifted the Blazer back in gear. "I'll change lanes and we'll go home. Together. But don't you forget that you're in the dog house now!" ©
Published by Jean Riva
Jean's main passion in the writing world centers around educating the general population about stroke related language disorders, caregiver issues and growing older---often using humor to do so. View profile
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18 Comments
Post a CommentRats! Even though I try to dole out these articles in small morsels so I can savor them, I actually read two of them today. Now I feel guilty. I hope there are plenty more left for me to go through. It is like reading a book and not wanting to get to the final chapters! So funny, just love your style!
Laughter is the answer what else have we???
i also have Aphasia and work part time now helping others with aphasia.
wow that is fantastic and it is a good thing that if God is letting you go through this, that you have such a great sense of humor and such love for your husband. I am amazed. YOu are wonderful and a saint.
I love reading you. Even though you have this huge advesary to overcome your love for your husband always shines through.
wow this is fantastic!
I really enjoy your stories. Very good write.
Thanks Jean, You made my evening! Enjoying your stories! I'll be sharing this site with my speech pathologist student friend. Hope you're doing well!
It is so good you can laugh at some of this to lighten the burden. I cracked up myself at the thought of all that singing and really not being able to communicate effectively to get the person to stop.
When we do clinicals at the nursing homes, they are always telling us to watch for the signs of caregiver burnout. Sounds to me like you have just enough sense of humor left to you that we need not fear you ACTUALLY tying him to the bumper with bungee cords for a trip to the bookstore.
My goodness Jean! What a trooper you are! Thought I was just returning a comment fave. Little did I know. Glad I stopped by. And I wish I had your knack for writing in the voice of comedy.