As someone born with severe disabilities, for which the highest expectation was to be institutionalized, I know that my parents could have quietly snuffed out my life, and in some circles, would have been seen as "heroes" for "ending my suffering".
I have read many heartbreaking stories of parents who took the lives of their children with disabilities and without fail someone would make excuses for that parent, saying that they were under stress due to the "burden" of raising a child with a severe disability. Yet, had that parent murdered their non-disabled child, that person would most likely be seen as a monster, not as someone who "loved" their child, and was doing what was "best" for him or her.
I learned early in life that I was considered a "burden", and there were clear differences in treatment between me and my twin sister, who is non-disabled. Some of my parents' friends were cruel enough to speak their thoughts to them in my presence, saying, "Why bother with her? Put her away, and be done with it. You have another child to consider". When I was ill (and that was often), they were encouraged, in some cases by doctors, to "let me go". Fortunately, my parents did not listen to that advice.
The heart of the matter is that society in general sees little or no value in the lives of children with disabilities. It is assumed that their lives are miserable, and that they will grow up to be burdens on society, living at the public's expense. It is easy to put forth the excuse that the child is "suffering" and will be "better off dead".
As a child, my disabilities and their treatment involved lots of physical pain, but that was nothing compared to the psychological torture of knowing that there were people who wanted me to die because I was disabled or who thought that my sister was better than me because she was "normal". Even today, the pain of knowing that there are those who feel that I and others with disabilities do not deserve to be alive, sears my very soul - the pain is unimaginable!
With the advent of assistive and adaptive technology, attendant and support services, support groups, parenting classes, service organizations, and independent living centers, there is no excuse for any parent to harm their disabled child. Parents who do so must face the same punishment and societal repercussions as someone who has harmed a non-disabled child. The murder of a disabled child is just that - murder. It is not an act of mercy.
Sources:
Personal Experience
Other Resources:
Not Dead Yet http://www.notdeadyet.org/
Not Dead Yet is a national disability rights group that organizes opposition in the disability community to legalized assisted suicide, euthanasia and other forms of medical killing. Not Dead Yet also speaks out when accused killers of people with disabilities are treated more sympathetically than killers of nondisabled people are.
Published by Anita Cameron
Anita Cameron hails from Chicago, IL, and is the younger of twins. She holds degrees in Biology, and Computer Information Systems. Drawing on her passion for social justice and change, she became involve... View profile
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28 Comments
Post a CommentYou are a very strong lady to be able to not let your disability get you down! You truly are an inspiration to others. It is very sad to know that there are parents out there willing to murder their children because they are not "perfect". When I found out I was pregnant my doctor asked if I would like to have an amnio done to detect any possible birth defects, I told her no because in my eyes it didn't matter if my child was born with a defect, he or she would still be my child. I believe that all children are gifts and should not be treated badly let alone killed for being different. Thank you for writing this.
I agree that killing anyone, especially with disabilities, is never okay. I don't have children but if I did, I could not imagine even thinking about killing it. It's not their fault that they were born that way. Some people are so disgusting. Well written article.
Yes, every soul is precious and deserves a chance to live. It may be a challenge for parents to help a child with disabilities overcome his or her obstacles, but that is an unparalleled opportunity for those parents to show selfless love, something this world is often sorely lacking. Thanks for sharing your experience and your thoughts.
Anyone who kills a child is a monster. Period. Comparing the killing of children to the killing of animals is like comparing apples and oranges, and I'm not falling for that one. Children with disabilities are every bit as worthy of life as others!
An interesting, thoughtful, and important piece. Thanks for standing up for life, Anita.
Hi Anita,
As the mother of twins who arrived very premature due to Twin-to Twin-Transfusion, I can tell you that even knowing they could have faced life with disabilities, I never even considered something that horrific. I'm proud of you for speaking out on such a disturbing subject.
Takes you back to Sparta.
Thoughtful piece on a painful subject. Thank you.
You are so right, and I know people who share that ignorant thought, "It's a shame to keep or more bluntly let a child you know will be disabled live." This is such a cruel thought and attitude. It is a shame and outrageous. You are a living example of how wrong these selfish, judgemental people are. God Bless you, you are amazing!
What an amazing journey, thank you for sharing yourself and your story! I, too, was one who was never supposed to live or become, but God and me had another idea! Blessings to you!