Among the registered guests at the conference, which took place on June 8, 2010, were 25 members of ADAPT, a national grassroots disability rights organization. I was one of the frustrated activists who interrupted Nancy Pelosi as she was addressing the group. In addition to raucous chanting, we unfurled banners, and passed out fliers.
The level of frustration that drove ADAPT to disrupt the Speaker's remarks stem from the fact that she refuses to support the Community Choice Act, a piece of legislation that would give people with disabilities and seniors the choice to receive their care at home, rather than a nursing facility, or other institution.
We have done our best to educate Speaker Pelosi regarding the Community Choice Act, to no avail. Our written requests to meet with her have gone unanswered. She repeatedly makes statements to the effect that she does not know how the Community Choice Act will be paid for despite the fact that ADAPT has sent her detailed information regarding cost savings, and payment strategies for this legislation.
Shortly after she began her speech, ADAPT members implored the Speaker to not only support, but to champion the Community Choice Act. Her response was that she had worked to get the Community Living Assistance Services and Supports (CLASS) Act into the health care reform bill. While the CLASS Act is an important piece of legislation that will help middle class Americans with disabilities, it does not address the institutional bias that federally mandates institutional care while leaving home and community-based care as "optional" services. The Community Choice Act would eliminate the institutional bias by mandating home and community-based services and supports.
To her credit, though clearly rattled, Nancy Pelosi maintained her composure, making lighthearted remarks about the noise, as she shouted to be heard above the relentless chants of "Our homes, not nursing homes!"
Some conference participants were angry, cursing and shouting at us, but after the speech was over, many of them calmed down and talked with us about why we were there. Robert Borosage, president of Campaign for America's Future, thanked us for coming and stated that he was interested in our issues.
Meanwhile, a national alert had gone out, asking people to call Speaker Pelosi's office and urge her to support the Community Choice Act. Later that day, I and four ADAPT members visited the Speaker's office at the Capitol to make yet another formal request for a meeting. The next morning, I was interviewed by Fox News about the protest.
It is my hope that the Speaker will meet with ADAPT and work with us to end the institutional bias that traps people with disabilities and seniors in costly facilities rather than living in freedom in our own homes and communities.
Sources:
Personal experience - I was there!
Published by Anita Cameron
Anita Cameron hails from Chicago, IL, and is the younger of twins. She holds degrees in Biology, and Computer Information Systems. Drawing on her passion for social justice and change, she became involve... View profile
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15 Comments
Post a CommentMy dad was in a nursing home after a massive heart attack resulting in global brain injury. There was literally nothing that he could do for himself. For some reason, he was place on the psychiatric ward of the nursing home, where he was neglected, starved and bitten by rats. After 13 days, he almost died, and my mum had him hospitalized. His doctor taught my mum how to do most of his care at home, and an independent living center arranged for attendants to come help out. Though my dad lived for six years at home, he eventually succumbed to a disease that he contracted while in the nursing home.
In Boston there were low income assisted living people and recovering drug addicts in the same facility..One woman was robbed and beaten to death.
Great article. To the point. It all makes sense, but why does it have to be so hard to get CCA pass. It saves money and more importantly gives folks a chance to make a choice. I could go on and on, but I won't. Free Our People!
Great article Anita!
Home care is much better for a person, and most people prefer to be in their own surroundings.
Anita, before submitting this note, I tried a Google search: "Why hasn't the Community Choice Act been passed?" I'm slow and stupid on computer researching but eventually I found an answer: Nursing home industry opposition. ........ Apparently also from what I read, you were wearing an orange shirt? (Just to show I tried to find news coverage; it was difficult.) ........ How does the average person relate to the Community Choice Act? (1) It's not like a "radical" proposal, it is submitted by Tom Harkin and endorsed (although he is now voted out) by the ultimate middle-of-the-roader, Arlen Specter. Plus it is endorsed by Easter Seals. It's not like Easter Seals is a commie front group, lol ......... Anita I admire you so much!
Great report and bravo for your activism efforts.
I am definitely for anyone who wishs obtaining care in the home rather than an institution.
Well written report. The Community Choice Act makes such good sense and I would think it would be less costly than nursing homes and much better care in the long run.
Good for you!