When my husband was diagnosed with Angiosarcoma, an extremely rare form of Sarcoma cancer, I searched online many hours to find sites where I could connect with others. I found random articles containing minimal information on Sarcoma research, and found little that I could work with.
However, for those needing proper information on Sarcoma cancer, there are a few excellent websites that can get you the information you need. As you know, knowledge is power, especially when it comes to battling rare cancers.
The Sarcoma Alliance has been working since 1999 to bring Sarcoma patients and their families the most up to date information on the cancer battle. Their website, http://www.sarcomaalliance.org offers great tools to connect with others also battling Sarcoma cancers. On this site, you can find information on the best Sarcoma cancer centers in the world, the latest news articles, and discussion boards for people to connect.
Visiting http://www.sarcomahelp.org will take you to the Liddy Shriver Sarcoma Initiative. Bruce and Beverly Shriver started this excellent organization to help those battling Sarcoma cancer to get the informaion and resources they need. Each year, they help to sponsor an awareness week for the locally organized teams for their Team Sarcoma challenge. They have worked long and hard to raise awareness for these rare cancers, and to bring to the public view the faces of Sarcoma.
Research is one of the greatest tools on the battle against Sarcoma. The Sarcoma Foundation of America, http://www.curesarcoma.org, supports active research for all types of Sarcoma cancers. With funding and advocacy, they are working to get more time and money invested into preventative care,diagnositcs, and a possible cure for Sarcoma cancer. Very little is known about proper treatment and diagnosis involving Sarcoma cancers, and the SFA is working hard to bring Sarcomas to the forefront of the cancer community.
The SARC, or Sarcoma Alliance for Research through Collaboration, http://www.sarctrials.org, is working to sponsor clinical trials for more Sarcoma cancer research. This is a great website to find the latest in research and clinical medical trials for treatment options for those battling Sarcoma cancers. The SARC is a great organization that helps Sarcoma patients connect with the most current research happening in hospitals and laboratories around the world.
Many individual hospital websites also offer great information on Sarcoma cancers. There are many hospitals around the United States that have cancer centers devoted to Sarcoma research and awareness. If you or a loved one is battling Sarcoma, you need to be pro-active about getting connected with the few resources that are available.
Become an advocate for yourself, and do not hesitate to get a second opinion. In the battle against Sarcoma cancers, they are often aggressive and hard to diagnose. If you think or know you may have a Sarcoma cancer, visit these websites to find the best Sarcoma centers closest to you, as well as the best tools for treatment.
The best tool against Sarcoma that everyone can use, is activism. Get the word out to your friends and families and let them know about the 13,000+ people per year that are battling these rare cancers. Together, we can work towards better diagnostics and treatment care.
Published by B.L. Boitson
I am an avid believer in life, love, freedom, equality, religion, belief, hope, trust, dreams, and knowledge. I am a self proclaimed "Queen of Cheap" featuring articles about how travel & do life on the che... View profile
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