CYSTIC FIBROSIS
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Strategies for Feeding Picky Eaters Who Have Cystic FibrosisThere is no magic method for getting a picky eater to change his ways, but these easy strategies helped me entice an active boy with cystic fibrosis to sit down and eat.- Cystic Fibrosis: A Personal Story About Experiences with PortsMy friend "Eleanor" is one of the longest living survivors of Cystic Fibrosis. She has undergone many medical treatments, and has agreed to share her experiences with ports and stents with us.
Cystic Fibrosis: A Personal Story - Part One: The DiscoveryThis is an interview about being diagnosed with Cystic Fibrosis. This is a first in the series.- Treatment for Cystic FibrosisThis article discusses five treatment options for cystic fibrosis.
- Common Signs and Symptoms of Cystic FibrosisThis article details the five most common signs and symptoms of cystic fibrosis.
- Secrets of Living with Cystic FibrosisI am a college student with cystic fibrosis. It is possible to follow your dreams, even when you have a serious medical condition.
- Coping with Home Infusion Therapy for Cystic FibrosisMany cystic fibrosis patients are well-seasoned professionals when it comes to managing the schedule of home IV therapy; for the newly diagnosed or parents who are learning the home IV routine for the first time, it can all be a bit overwhelming.
- More Women with Cystic Fibrosis Are Becoming MothersOnce a fatal childhood illness, people with Cystic Fibrosis are now living longer than ever. Many women with this disease are now facing the question on whether or not they want to have children of their own.
Cystic Fibrosis Steals Time and Breath from MeThis is a written transcript of my speech given at the Cystic Fibrosis Spring Gala.- Your Help is Needed to Find a Cure for Cystic FibrosisThe Cystic Fibrosis Foundation (CFF) has plenty of events planned for 2007. Check out how you can get involved and help find a cure for this devastating disease.
Lindsay Wadleigh, San Diego American Idol Hopeful, Raises Awareness for Cystic FibrosisLocal San Diego girl, Lindsay Wadleigh recently auditioned for American Idol. In this interview she talks about her personal struggle with cystic fibrosis and how she's making a positive difference by using her voice to increase awareness of this life-shortening disease.- Educational Needs of Cystic Fibrosis PatientsWith the increased life expectancy of people born with cystic fibrosis, education needs to be directed toward self-care and transition into adulthood and self-sufficiency.
Cystic Fibrosis and My College ExperienceThe pursuit of higher education is a challenge. My experience was even more challenging because I have cystic fibrosis (CF). This article is just a brief description of how I learned to balance my health and academics.- Bone Mineral Density and Cystic FibrosisA DEXA scan is a simple procedure that is useful for determining whether a cystic fibrosis (CF) patient is at risk for developing osteoporosis.
- Preventing Lung Exacerbations in Cystic FibrosisThis article gives a brief overview of some of the most commonly prescribed medications used to prevent pulmonary exacerbations in cystic fibrosis (CF) patients.
- Cystic FibrosisCystic Fibrosis is a genetic disease affecting many people throughout the United States.
- Cystic Fibrosis: A Life-Threatening Disorder that Causes Severe Lung Damage and Nutritional DeficienciesCystic Fibrosis is a life-threatening disorder that causes severe lung damage and nutritional deficiencies.
- New Drug PTC124: Potential Treatment for Cystic Fibrosis and Duchenne Muscular DystrophyA drug called PTC124 which may provide an effective treatment of a wide variety of genetic diseases such as cystic fibrosis and Duchenne muscular dystrophy is currently undergoing clinical trials.
- Cystic Fibrosis ResearchCystic Fibrosis
- HIV to Cure Cystic Fibrosis?Research conducted by geneticist Suzanne Buckley at University College in London may provide a new treatment for the life-threatening disease cystic fibrosis. The potential cure comes from using the HIV virus to insert healthy genes into the infected patient's lungs.
- Cystic Fibrosis and Goal-SettingShould a person with Cystic Fibrosis aim high? Absolutely! Of course. Should that person continually keep setting higher goals? That all depends on the goals that are being made.
- Cystic Fibrosis and the Battle Against BacteriaPeople with cystic fibrosis must be constantly vigilant to avoid infection. Even in the home, dangerous bacteria are present. This article describes where bacteria thrive and how to get rid of it.
- Progression, Treatment and Prevention of Bowel Obstruction in Cystic Fibrosis PatientsAdequate nutrition for persons with cystic fibrosis is an ongoing battle, made even more complicated by things like bowel obstruction and malabsorption.
- Finding Information About Cystic Fibrosis OnlineCystic Fibrosis is a genetic, potentially life-threatening lung disease. The internet has some great resources for those who'd like to find out more about cystic fibrosis:
- Oregon Seventeenth State to Require All Newborns Be Tested for Cystic FibrosisCystic fibrosis is a potentially life-threatening lung disease, it affects about 15 babies born in Oregon each year. Oregon is the seventeenth state to make it a requirements that all infants born be tested for the genetic disorder, cystic fibrosis.
- A Day in the Life of an Adult with Cystic FibrosisManaging the daily rigors of cystic fibrosis (CF) requires diligence, discipline, and time management skills. This article presents a first-person point of view of what it's liken to contend with this incurable disease day in and day out.
- Cystic Fibrosis a Possible Protection Against Other Diseases?Could Cystic Fibrosis offer protecition against typhoid fever? Earlier studies linked CF with a certain amount of protection against cholera - could this be a similar case?
A Little True Story About My Son with Cystic FibrosisOur son's Diagnosis What the Dr.s Missed- Living with Cystic FibrosisCystic Fibrosis is an incurable inherited disorder, that causes increasingly severe respiratory problems and often many experience difficulty in digesting their food.
- Cystic Fibrosis Detailed in Book Going the DistanceTracey Richardson's compelling new book "Going the Distance" - a riveting autobiographical account of her many triumphs over seemingly insurmountable odds.
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Contributors: Cystic Fibrosis
RODRICK SPADINGER - CYSTIC FIBROSIS ADVOCATE- CC Curran
Iris Davis- mary sampson
- Erin Murdock
Rebekah Sprecher