RARE DISEASES.
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- The Development of Medicines to Fight Rare Diseases in the PipelineRare diseases are claiming more life than the well known diseases. Keeping this fact in mind, researchers across the world are doing research and study on these diseases.
- More Research and Funding Are Needed to Discover Causes and Treatments for Rare DiseasesRare diseases do not get the attention needed to create funding for research because they affect such a small number of the nation's population. These rare diseases need more attention and research.
- 1 in Million - Rare DiseasesRecently, Michael Jackson was reported to be suffering from a rare genetic disease called Alpha-1 antitrypsin deficiency. The condition is just one among the 8,000 or so known rare disease worldwide.
- Patient Support Groups for Rare DiseasesYou have just found out you have a rare Disease. Other than moral support from friends and family members where will you go to find information as well as get direction? Below is a list of support groups that might assist you.
- Rare Diseases: Amish Lethal MicrocephalyUnfortunately this disease has no cure until today. Treatments available are only of a supportive nature.
- Rare Diseases: Solutions for Orphan DrugsIn 1983, US Congress passed the Orphan Drug Act. - opened the doorway for drug companies to invest, research and develope orphan drugs, which become profitable. Countries, members of Congress, and science, initiated further gains for orphan drugs.
- Rare Diseases Such as Werewolf Syndrome and MoreFive extremely rare and weird diseases from all over the world that you will find bizarre. Some of these conditions are extremely rare and, some of which, are only found in certain parts of the world.
- What Unusual Diseases in Fiction Still Occur Today?Ever wonder about those strange and exotic conditions and diseases in classic fiction? In no particular order here are five rare diseases associated with fictional characters.
Rare Disease Day 2009On February 28th, 2009 the world celebrated Rare Disease Day.- Acute Intermittent Porphyria: A Rare DiseasePart of the problem with rare diseases is that the general practice doctor does not know them. This make difficult to diagnose a rare disease and are often misdiagnosed.
- CDKL5:A Rare Genetic DisorderCDKL5 is an extremely rare genetic disorder that causes developmental delays, seizures, and other health problems. There are approximately 200 children worldwide diagnosed with CDKL5.
Moebius Syndrome, a Rare Disease that Can Break Parents' HeartsMoebius Syndrome is a rare disease any parent would not want their child to have. Otherwise, they will be in for a lifetime of struggle to keep their child alive and near normal.
Only One Day Left Until Rare Disease Day 2010Rare Disease Day 2010 is one day away now. It's best to keep this an all year thing, knowledge is power! On 02/28/2010 the day is recognized world wide.- Most Common Foodborne DiseasesWhat are the most common foodborne diseases, where do they come from and what are their effects on humans?
- Melorheostosis-A Rare Skeletal DisorderI am trying to raise awareness of diseases that usually go unmentioned. My hope is that this creates awareness and support. Melorheostosis is said to affect 200,000 in the US.
- Tyrosinemia: A Rare Metabolic DisorderLearn about the three forms of this rare metabolic disorder and how it prevents the body from being able to effectively break down the amino acid tyrosine. What can be done to treat this disorder?
- Problems with the Immune System and Facts About Immune System DiseasesProblems with the immune system can be relatively minor, leading to frequent colds and other viral or bacterial infections. Or they can be major diseases.
Rare Clarkson's Disease Makes Patients Feel IsolatedThere are only about 100 of them in the U.S. and 200,000 in the world. They have a rare condition and often feel alone. Thanks to a new web site, however, these patients can share their experiences.- Acromegaly - This Rare Disease Can Cause Giantism and Facial DistortionAcromegaly is a rare disease caused by over production of the growth hormone. This article cites the myriad debilitating changes sustained in the body; causes of the disorder, signs and symptoms of the disease and treatment options.
- Progeria: A Rare Aging Disease in Children Finds Hope for TreatmentProgeria is a progressive genetic disorder that is known to cause a child to age very rapidly. A new study finds that progerin is present in people without the disease, so could this mean treatment is coming?
- Polycythemia Vera and Orphan DrugsThere is little incentive to develop orphan drugs for rare diseases. Therefore, there are government programs to provide incentives.
5 Grotesque & Unearthly DiseasesStrange, Pleasurable & Deadly Diseases you would not want to have.- Laughing Disease, Growing like a Tree and Other Weird Diseases and ConditionsYou may think laughter is good for the soul, but it's no laughing matter if you're inflicted with this condition. Find out other weird conditions and diseases that may eventually kill you.
- Fatal Familial Insomnia, Graft Versus Host Disease, and Other Unusual DiseasesDying from lack of sleep, seeing things smaller than they really are,and a rare breathing condition named after a curse put on a cheating lover are all part of my top five strangest medical conditions.
- Five Weird Diseases - Mermaid Tails, Blue Men, and MoreReviews 5 strage diseases most people have never heard of.
Understanding Rare Wolman Disease in NewbornsWolman Disease is a rare disease that affects approximately 1 in every 350,000 newborns. It has no cure and is fatal in those who were unfortunate to have been born with it.
Rare Disease Day - February 28This February 28, 2010, will be the second annual Rare Disease Day. It is held to call attention to the importance of developing tests and treatments for rare bone diseases.- Top 5 Preventable Diseases in Men Under the Age of 40Younger men are less likely to visit the doctor on a regular basis, whether that is because of a feeling of invincibility or insecurity. There are many preventable diseases that men under 40 are susceptible to that every man should know about.
Genetic Diseases in Purebred DogsPurebred dogs are not only a monetary investment, but an emotional investment. If your in the market for a purebred dog or own a purebred dog you need to be aware of these common diseases.- Eat, Drink and Enjoy a Rare SteakNot being permitted to order a rare steak at a local restaurant got me to asking the question, "Are we overly concerned with foodborne illness"? Will contact with bacteria always get us sick? How can we still enjoy a rare steak?
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