Shwachman
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Shwachman-Diamond SyndromeAn over view of Shwachman-Diamond Syndrome, the diagnosis of Shwachman-Diamond Syndrome and management. -
Shwachman-Diamond Syndrome Research Grants Available from Shwachman-Diamond AmericaInformation on how to apply for an Alex Turnquist Memorial ShwachmanDiamond Syndrome Research Grant from Shwachman-Diamond America. -
Shwachman-Diamond SyndromeShwachman-Diamond Syndrome is a rare genetic syndrome that is often misdiagnosed. It is important for parents to know the signs and symptoms for the health of their child. -
Mystery Diagnosis: The Purple Puzzle EpisodeA review of the Shwachman-Diamond Syndrome Segment of Mystery Diagnosis. -
Coping with Medical Bills and Insurance WoesTips from a mom with two Shwachman-Diamond Syndrome boys on how to cope with medical bills. -
Using Fun, Humor to Help Children through Hospital Stays and ProceduresI could write a book on helping children cope with hospitals and medical procedures. Having two children with Shwachman-Diamond Syndrome, we have seen our fair share of hospitals. -
God's Grace is SufficientA story about a child with Shwachman-Diamond Syndrome who responds to a reporter asking, "How does Shwachman-Diamond Syndrome affect your life?" with, "It doesn't." -
Traveling to Cincinnati Children's HospitalA mom gives practical tips for traveling to Cincinnati Children's hopsital. Tips on where to find help in planing your visit to the hospital and also things to do outside of the hospital, in the Cincinnati area. -
Homeschooling: A Good Option for Kids with Chronic IllnessesWhen we first set out on our homeschooling journey, we did not know that we would have two children with Shwachman-Diamond Syndrome (SDS). My oldest child was two and a half when we first decided that we would be a homeschooling family. -
Building a Family WebsiteArticle describes how to go about building a family website that may be used to keep friends and family informed during hospitlaizations, or to connect with others with SDS.
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Camps for Children with Special Health Care NeedsAn article about camps for children with special health care needs. A mom with two children with Shwachman-Diamond Syndrome tells a bit about her family's experience and lists camp resources for families considering a camp for their child. -
Ways to Increase Calorie Intake in a Healthy WayThis article is targeted to the parents of children who have conditions like Cystic Fibrosis or Shwachman-Diamond Syndrome. Usually these children have trouble gaining weight and this is just some advice to help them. -
Life Along SDS Highway 101 with Frequent Vacations in EgyptA story about finding support from other SHwachman-Diamond Syndrome(SDS) families while dealing with two children that have SDS. -
How to Host a Bone Marrow Donor DriveA mom of two boys with Shwachman-Diamond Syndrome describes the steps she took to set up a bone marrow donor drive in her town. -
Homeschooling Day Trips: Portland, Maine LighthousesVisiting Portland Head Lighthouse and Spring Point Ledge Lighthouse in a day trip. -
Homeschooling Trips: PhiladelphiaVisiting the historical sites of Philadelphia is fun and educational. -
Sweet Iced Tea from the Sweet Tea BeltThere is nothing like sweet iced tea on a hot summer day! Enjoy mint sweet iced tea or lemonade iced tea for a refreshing twist, -
Homeschooling Day Trips: New York CityNew York CIty is a great place to visit, even if only for an afternoon. -
Homeschooling Day Trips: Lancaster PennsylvaniaTaking an afternoon drive through Lancaster is a great way to learn about the Aish religion and culture. -
Gluten Free Recipes: Graham CrackersDelicious gluten free graham crackers -
Home for the HolidaysAn article about going home for the holidays when you have kids that live with chronic illness and spend a lot of time in the hospital. -
Homeschooling in North Carolina and the Voluntary Reporting ProgramHomeschooling is a hot topic in recent news. The California incident brought the legal issues into the public view. As a homeschooler, I have been asked questions about the recent California case over and over again. -
Accepting Charity for Chronically Ill ChildrenRaising children with chronic, potentially life-threatening illnesses comes with a host of challenges. Not only do these challenges affect the sick child, but they affect the entire family. No one escapes chronic illnesses unaffected. -
How to Cut Costs When Traveling for Medical TreatmentsTips on how to save money when you have to travel long distances for medical treatments. -
The Art of Making Hamburger and Hot Dog BunsMaking your own hamburger and hot dog buns from scratch is fun! -
How to Grow Pumpkins in a Container GardenGrowing pumpkins in a container is fun and easy. This article gives the reader step by step instructions on how to grow pumpkins in a container garden. -
Out of the DarknessOften times, we find that our world is tumbling out of control. Stress, hospitalizations, trying to balance school, work and play wreak havoc on our lives. Thankfully, I've always managed to make my way out of the darkness and back into the light. -
What Happened to Charity and Civility?A society that cheers reality TV with hosts who insult contestants has lead to a soceity which is lacking in civility and charity. -
Sibling Challenges with Chronic IllnessSibling challenges are much the same no matter the household. Chronic illness adds its own challenges, but the sibling issues would still be there even without having a sick child.
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A Matter of PerspectiveParents of chronically ill children can bring a message to the world. I believe these children can bring a message to the world. It is a matter of perspective. -
Acute Lymphoblastic Leukemia Causes and Risk FactorsThe exact cause of acute lymphoblastic leukemia is not completely clear. It is believed that this type of leukemia may be caused by a combination of biologic, genetic, and environmental factors.
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How to Communicate Effectively with Your Child's DoctorEffective communication is a key ingredient in receiving the best health care for your child. This article provides tips for effective communication. -
Gluten-Free Recipes: Gluten-Free BrowniesMaking gluten-free brownies is easy! These brownies disappeared within ten minutes once I took them out of the oven. These brownies are so good, that even those of us who are not gluten-free think they are awesome! -
Medication and Medical Supply when They Aren't Covered by InsuranceGetting the medical supplies and medications you need when you have been told they are not covered expenses. -
Beyond the Second Opinion: Is There Hope?Finding effective treatment options can mean getting more than a second opinion. This article offers sage advice on getting more than one opinion. -
Gluten-Free Recipes: White CakeThis elegant gluten-free white cake is perfect for any party or even a wedding!
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Gluten-Free Recipes: Gluten-Free Gingerbread CakeA delicious gluten-free gingerbread cake is possible! -
Looking on the Bright Side of Chronic IllnessCounting your blessings and looking on the bright side helps patients and families cope with chronic illness and medical procedures. -
You Are Not Alone on This Highway!This is a story about our trials and acceptance of a journey down the diagnostic highway! I hope our story helps others going through the same process know they are not alone.
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Not AloneDifferent ways you can cope and keep your relationships healthy when you have a special needs child.
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