Turner Syndrome On-Line Resources

If you or someone you love has Turners Syndrome, a genetic disorder occurring in women leaving them with a karyotype of 45X, there are on-line resources that can be a great help in dealing with issues surrounding Turner Syndrome.

Turner Syndrome On-Line Resource #1 - Turner Syndrome Society of the United States - http://www.turner-syndrome-us.org/

Not only does the Turner Syndrome Society of the United State provide a lot of information background information on Turner Syndrome, helping to separate facts from fiction, it also brings together a network of local Turner Syndrome Societies all across the United States. In addition, a conference is held every year. As a past participant, it is a wonderful way to meet other girls, teenagers, and women who are living with Turner Syndrome. As the condition isn't discussed much, or that common, this is the first opportunity that many with Turner Syndrome have to meet someone else dealing with the same issues.

Turner Syndrome On-Line Resource #2 - Turner Syndrome Support Society (UK) - http://tss.org.uk/

This is essentially the United Kingdom version of the Turner Syndrome Society of the United States. From all appearances, its members are very active on-line (MSN forums, search Turner Syndrome) and they have a lot of unique opportunities that allow women in the UK with Turner Syndrome to meet.

Turner Syndrome On-Line Resource #3 - Turner Syndrome Registry - https://www.tsregistry.org/home.html

This particular website provides a way for women with Turner Syndrome to register and eventually participate in clinical trials and studies. It is necessary in order to advance the amount of information known about the effects of Turner Syndrome.

Turner Syndrome On-Line Resources #4 - Adoption.com - www.adoption.com

Obviously, this website isn't geared specifically towards women with Turner Syndrome, but infertility is experienced by most women with the condition. Adoption is an option that should be explored by anyone experiencing infertility wishing to become a parent.

Turner Syndrome On-Line Resources #5 - Resolve.com (Infertility Information) - http://www.resolve.org/site/PageServer

This is a wonderful resource for anyone dealing with infertility. It explains a wide variety of options, including treatments, in-vitro fertilization, and adoption. It also includes a lot of options with regards to networking with other people dealing with these issues, as well as up to date information with regards to adoption rules and regulations.

Turner Syndrome On-Line Resources #6 - Informative Article Regarding Turner Syndrome - http://www.medicinenet.com/turner_syndrome/article.htm

If you have just been diagnosed with Turner Syndrome, or have a family member who has, this is where you need to start. It provides a good overview of the condition and is especially helpful for expecting parents who have had their daughter diagnosed in-utero. While it is an option to abort the pregnancy, most women who have Turner Syndrome live full, productive lives.

Turner Syndrome On-Line Resource #7 - TS Corner - www.tscorner.net

This is a personal website that is geared towards younger Turner Syndrome women. Most of the resources, information, and networking are geared towards children who have Turner Syndrome and older women. This website and forum seeks to fill that gap. The website is in its earliest stages, but the forum membership is steadily growing. New members who are eager to be active are encouraged to join.

There are a wide range of conditions and issues associated with Turner Syndrome, but the most common are short stature (I, myself, am 5 foot even) and infertility. There are also heart, kidney, and skin issues associated with Turner Syndrome. Turner Syndrome affects 1 in 2,500 female live births and there is no known cause.