What it Really Takes to Raise a Child with Down Syndrome

Mrs. Renee
It is very sad to get the news that your child will have to live out their lives as a handicapped child. When parents first find out this information they are often very upset and sometimes blame themselves. Then they are faced with the decision of whether or not they would be able to care for all of the needs of the baby by themselves. The first thing that a parent who finds themselves in this situation needs to do is find out exactly what will be required in order to raise a child with down syndrome. Of course this article is in no way suggesting that you should not raise your own child, but instead it will highlight exactly what would be required on the part of the parent. It is up to the parent in order to decide if they can handle the situation or if they will need help, or if they just can not deal with the situation.

First of all you will need to realize that someone will have to be with your baby all of the time. Even as they grow older they will need constant supervision and attention. This can sometimes be a lot for one parent to deal with all by themselves. In some cases doctors may be able to tell that your child has Down syndrome before they are even born. This would give both parents the opportunity to take classes and join the necessary support groups. If however you do not find out until after you baby is born you should not feel that you can not take any classes. Your doctor should give you plenty of resources on where you can get additional information on how to raise a child with Down syndrome. One thing that parents need to keep in mind is that children with Down syndrome do not grow or learn at the same rate as other children their age. You will also have to get your child checked by their doctor on a regular basis. Most children who are born with Down syndrome also have other health problems or may develop additional health problems later on.

The best thing to do for any baby born with Down syndrome is to get them plenty of therapy while they are still and infant. This will give them the best head start possible. Caring for a child with Down syndrome will also be a lot of hard work for all who are involved in this child's life. One thing that you will need plenty of is love and support from family and friends, who will be there to give you a break when needed, and assist you when needed. The bottom line is that it will take a lot of hard work, but both the parents and the child can learn to live and cope with this disability. The key is for everyone to work together and learn all that they can together.

Published by Mrs. Renee

Renee is a stay at home mom who homeschools, and a wife, who has been writing for a number of years on a variety of parenting, and education related topics. These topics include homeschooling, travel, and p...   View profile

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  • Your Name 7/21/2009

    Apparently Chandos Field did not know anymore than the author of this article about raising children with down Syndrome. She may be knitting blankets and making everyone on the internet think she is such a great mom to children with DS when she no longer even has those children or her own son. Be careful of what you read and who you trust on the internet. They not be who they say they are.

  • Your name 11/6/2008

    I just found out that my daughter, due April 6th, has DS. I have been reading as much as possible on raising a child with DS, so I can be as prepared as possible. Even I, who have not yet experianced life with a DS child, found myself wondering what year this was written, or if the author had any children at all. WOW!! This needs to be taken off of here. Even I know how misleading this is!!!

  • kate 12/4/2007

    The author of this article should be fired for sloppy writing skills as well as inaccuracies. I feel that the author was very lazy and did no real research in writing or preparing for this article. This is a poor reflection of the media source that hired him or her.

  • Murphsmom 8/22/2007

    I'm sorry, but, the context with which you wrote this is not well written, or thought out. There are misspellings and how could this article be taken seriously? I think you mean well and some of your comments have a grain of truth, but, your article comes off as quite negative and a situation to be pitied. I am the mother of a 1 yr old baby girl with DS. Even though she started off in life with severe heart defects, she is FAR from fragile or in constant need of medical care. She is the picture of absolute health. She is thriving and growing in so many ways. She is no different than a typical child her age and is far more easier to take care of. If you do not have a child with DS, please do not talk about this topic you know absolutely nothing about.

  • Stessieb3 8/22/2007

    There are truly things you need to know when raising a child with Down Syndrome but you seemed to miss all the important things. I truly laughed out loud while reading. This article is not recommended for new parents as it is not factual. Where are your resources? I would be interested in seeing where you got this information.
    This is truly garbage, a spew of words thrown together to make nonsense. I challenge you to do actual research and try this one again. You can contact me if you need any help through www.megansgot47.com

  • booboo&bubba 8/22/2007

    There have been a lot of comments posted, but I just had to add mine. The author is really clueless about what raising a child with Down syndrome truly entails. If this article had been my introduction to Down syndrome when my 17 month old son was born, I would have been the one who would have needed to be institutionalized, not him! The article is scary and totally inaccurate. I can't even look at other articles this author has written if they refer to "retarded babies"... my goodness.

  • Miraclemansmom 8/22/2007

    While I realize that every child with DS is different (just like every "typical" child) my son with DS has been nothing but easy. In fact, I'm rather scared to have a typical child now because he's been such a marvelous experience. Sure, there are ups and downs just like raising any child. He had heart surgery at 5 months old and that was TOUGH. There are lots of therapies, but honestly it's just been really nice because I've had people help me learn what he needs.

    I'm sure you had honest intentions in publishing your piece, but most of what you said comes off very negatively and could really give people a wrong picture of reality.

  • Chandos Field 8/22/2007

    My first thought is, how is this drastically different from raising any "typical" child?

    What about the unknown joys that come? What about the immense love a child with DS brings (just like any other child.) What about the lives they touch and the lives they bring into YOU life as a result of having a child with DS?

    What about the adults with DS that live on their own, sans constant adult supervision? The number of THOSE individuals with DS is steadily on the rise thanks to the intervention available today, the resources and the EDUCATION of doctors, parents and people in the field who are in a position to aid these individuals in overcoming the hurdles they may face.

    I have three children. Both of my daughters have Down syndrome. Not only did I CHOOSE to raise these wonderful little girls, but I am amazed at how UNPREPARED I was for just how "normal" and "typical" they are. Yes, they need therapy. Yes, we read the same book numerous times a day. Yes, they need some ex

  • e wilson 8/22/2007

    I don't KNOW a parent that doesnt realize you have to work hard to raise your child! DS OR NOT!

    And the health issues?? do ya THINK there are children out there that have health issues that DON'T have downs syndrome?? THEY ARE JUST KIDS!! just like yours! sheeeeeeeeeeeezzeeeeeeeeeee!!


    WHERE IS THE EDITOR TO THIS 'PAPER'?????

    Just a suggestion to him/her:

    you might want to have 'experts' i.e. PARENTS THAT LIVE IT...writing for 'expert' articles for you in the future!

    Next up! Stevie Wonder to be new Driver's Education Teacher!


    give me a BREAK!

  • dotty 8/22/2007

    Jessica, it's unfortunate, but I must point out that even if you grew up with someone who had Ds, there is certainly no comparison to giving birth to a child with Ds now. Things have changed vastly since just ten or twenty years ago. As far as "militant" parents go, my that seems a little harsh of a statement doesn't it? Who better to serve the interest a such an important subject than those who have first hand knowledge?

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